Privacy Policy



Who are we? 

The Jain and Hindu Organ Donation Alliance (JHOD) was set up in November 2018 to increase organ donation among the Hindu and Jain communities in the UK. We also support blood and stem cell donation.

We are committed to protecting your privacy and any information we collect about you will be treated with respect and confidentiality according to the rules of the General Data Protection Regulation (GDPR).

Your privacy is important to us and this policy explains how we use your personal information and keep it secure. If you have any questions, would like to get in touch about anything in this policy or about your personal data, then please contact:


Kirit Modi

Chair, JHOD

22 Chestnut Avenue, Edgware, HA8 7RA


What is personal information?

Personal information covers any data that enables us to identify you as an individual. This could include name, address, telephone number or email address.


What information may we collect about you?

  • Information from you via email or text you send to us so that we can send you relevant information, our newsletters and invite you to events.
  • Records of any correspondence you may send us.


How do we use your personal information?

When you provide your information to us, we will only use the information for the purposes for which it is provided, for any compatible purposes and to fulfil our legal and regulatory obligations unless you have agreed for your data to be used for other purposes.

Uses for your information include:

  • To spread awareness of upcoming events related to JHOD and our work.
  • To inform you of the diverse ways we are working to promote organ donation and campaigns on your behalf.
  • To keep you informed about news, events and campaigning activities.

When you supply personal information to us, we only use this information for the purpose for which it was given and ensure that it is kept securely.

We take all reasonable technical and organisational precautions to ensure the security of your data which is not transferred outside the European Economic Area.

You can change the way we communicate with you, at any time.


Lawful basis for processing your information

We process your information on the basis of consent to send you communications, such as emails because you have given us clear consent to do so.

How long do we keep your information?

We only keep your information for as long as we need to. We will have a lawful reason to keep your data and when we no longer need it, we will delete it.


Do we share your personal information?

We do not share your details with third parties unless you have given us permission to do so.


Your rights

  • ‘Right to be informed’ means we will be completely clear and transparent about how we plan to use your personal information.
  • ‘Right of access means you can request a copy of the personal information we hold about you and we will provide it within one month.
  • ‘Right to rectification means you can ask us to update or amend the information we hold about you if it is incorrect.
  • ‘Right to restrict processing’ means you can ask us to change, restrict or stop the way we are using your information.
  • ‘Right to erasure’ (of right to be forgotten) means you can ask us to remove your personal information from our records.
  • ‘Right to object’ means you can object to us using your information for marketing purposes.
  • ‘Right to data portability means you can obtain and reuse your personal data for your own purposes.
  • ‘Right to lodge a complaint’ with a supervisory authority, such as the Information Commissioner’s Office (ICO), if you are not satisfied with our response to your request, or you feel we are not using your information correctly.


How to update your details

To notify us of a change to your name, address or email details, please contact Kirit Modi. Please keep us informed of changes so we can stay in touch.


Changes to our Privacy Policy

We may change this privacy policy from time to time. If we do so, we will post the changes on this page, and will apply from the time we post them. This policy was last changed on 30 June 2020

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