by jhodsteeringgroup | Oct 3, 2025 | Organ Recipients
At the age of 28, I was diagnosed with arrhythmogenic cardiomyopathy caused by a faulty gene. My heart muscle had become enlarged, and I suffered from ventricular tachycardia (VT) — dangerous, fast heart rhythms. To manage the condition, I had an Implantable...
by jhodsteeringgroup | Oct 1, 2025 | Campaigns, Cultural, Events
Organ donors from Harrow were celebrated in a heartfelt ceremony held on 24th September at the Mayor’s Parlour as a part of Organ Donation Week.Hosted by the Mayor of Harrow, Cllr Anjana Patel, the event spotlighted the selflessness of individuals and families who...
by jhodsteeringgroup | Sep 30, 2025 | Organ Recipients
In 2017, I received a life‑saving double lung transplant to treat my Cystic Fibrosis (CF). CF is a progressive genetic condition that causes thick, sticky mucus to build up in the lungs and digestive system, making it increasingly difficult to breathe and leading to...
by jhodsteeringgroup | Oct 7, 2024 | Campaigns, Cultural
Vacancies We are seeking three part-time coordinators to help us continue our work to raise awareness of organ donation across England and Wales. These new roles are funded by NHS Blood and Transplant through our two-year partnership with the Community Grants...
by jhodsteeringgroup | Jul 11, 2024 | Campaigns, Legislative, Resources
JHOD’s 4-year strategy is an ambitious step to address the profound effects of the COVID-19 pandemic and three years on from the organ donation law change in England and its limited impact. Much still needs to be done to encourage more people from South Asian...
by jhodsteeringgroup | Jun 30, 2024 | Campaigns, Cultural, Donor Families, Resources
Jain and Hindu Organ Donation Alliance partnered on an innovative project with the Royal Free Hospital to help Jain and Hindu patients awaiting kidney transplants. The completed project involved one-to-one engagement with 19 patients and their families and a...
by jhodsteeringgroup | Nov 30, 2023 | Cultural, Events
Hundreds of people visited us at Diwali in Trafalgar Square to find out more about organ donation and their choices. We were joined by special organ donation nurses from NHS Blood and Transplant to answer questions and encourage conversations. Thank you to all who...
by jhodsteeringgroup | Nov 30, 2023 | Campaigns, Cultural, Legislative
An Organ Donation Summit held at City Hall in London marked an important milestone in the efforts to increase organ donation rates and save more lives. The Summit was organised by Jain and Hindu Organ Donation Alliance (JHOD), The National Black, Asian, Mixed Race,...
by jhodsteeringgroup | Sep 10, 2023 | Uncategorized
This Paryushan, we are urging the Jain community to join hands and complete this pledge. Numbers waiting for a transplant continue to rise, and we can help by giving two minutes to register our decision to donate our organs. Please register your pledge...
by jhodsteeringgroup | Sep 8, 2023 | Events, Legislative
Three years on from the law change in England, JHOD calls on the community to make a ‘definite organ donation decision’ and tell their families about their wishes. This follows findings of research commissioned by the London School of Hygiene and Tropical...
by jhodsteeringgroup | Dec 2, 2022 | Legislative
Jain and Hindu Organ Donation Alliance has recently become a charity and announced three eminent patrons during the evening: Lord Jitesh Gadhia; Professor Sir Nilesh Samani and singer, songwriter, and musician Navin Kundra. Lord Jitesh Gadhia, Patron of JHOD, said:...
by jhodsteeringgroup | Dec 1, 2022 | Cultural, Events
A wonderful Diwali celebration on 5 November in honour of living donors and donor families from the Jain and Hindu communities and shown on Aastha TV on 27 November 2022. Our grateful thanks to the donors, donor families, our Steering Group, Trustees and supporters,...
