Case Studies
By becoming an organ donor you could help up to nine people in real need.
It’s important to understand the choices you have and why having a conversation with close members of your family and friends about your decision can help.
We are delighted that we have a number of Jain and Hindu personal stories from donor families, patients waiting for an organ transplant and transplant recipients. We will continue to include more stories, and if you know of anyone who may be interested in sharing their story, please contact us at info@jhod.org.uk
Donor Families
Successful Living Kidney donation project
Jain and Hindu Organ Donation Alliance partnered on an innovative project with the Royal Free Hospital to help Jain and Hindu patients awaiting kidney transplants. The completed project involved one-to-one engagement with 19 patients and their families and a community event at Lohana Community North London .
Bharat Kakkad
Shivum's father, Bharat, fell ill suddenly one morning in May 2019 at home. He sadly never regained consciousness and died a few days later in hospital. He had suffered a cardiac arrest causing hundreds of tiny strokes. He was only 63. The family had never spoken about organ donation....
Kurran Mehta
19-year-old Kurran's mother Pragna Mehta-Patel fulfilled his wishes by donating his organs following a fatal car accident which saved four lives and has inspired many others to sign up to save lives. Kurran had always been a giver and signed up on the organ donation register when he...
Organ Recipients
My story: Heart Transplant gave me a new lease of life – Sandeep Shah
At the age of 28, I was diagnosed with arrhythmogenic cardiomyopathy caused by a faulty gene. My heart muscle had become enlarged, and I suffered from ventricular tachycardia (VT) — dangerous, fast heart rhythms. To manage the condition, I had an Implantable Cardioverter Device (ICD) fitted. For the next 20 years, I managed to live an active lifestyle. I worked, travelled, played sports, and enjoyed a relatively normal life. But towards the end of 2018, everything began to change. I became...
My Story: Life after a double lung transplant – Hetal Mistry
In 2017, I received a life‑saving double lung transplant to treat my Cystic Fibrosis (CF). CF is a progressive genetic condition that causes thick, sticky mucus to build up in the lungs and digestive system, making it increasingly difficult to breathe and leading to persistent lung infections. When I was born, doctors told my parents that my life expectancy would be just 11–12 years. Thanks to advances in medical care, I am here today at 44. Growing up with CF Living with CF was like having a...
Jyoti Jadav
I’ve finally had my kidney transplant and my new kidney means a new life for me. We’ve been here before, but now I have my life back. I can do the things I’ve wanted to do, no more physical and emotional pain. Having a kidney donated to me by a wonderful person...
Living Donors
Harsha Kothary & Kirit Kothary
I am a great believer that when you light a lamp for somebody, it will also brighten your path. My husband Kirit suffered from high blood pressure and Crone’s disease for several years and in 2011 he was diagnosed with scars on his kidney which affected his kidney function. In November 2014 we were told that we need to start preparing ourselves for dialysis or a...
Roopa Rana & Nuri
In 2010 I was diagnosed with IgA nephropathy, also known as Berger's disease, a kidney disease that occurs when an antibody called immunoglobulin A (IgA) builds up in your kidneys. Eventually, my kidneys were not able to filter waste from my blood. I was monitored for over two years, and the hospital advised me to start asking family and friends if they wanted to donate a kidney...
Prafula Shah & Shakti Shah
Prafula Shah donated a kidney to her niece Shakti to give her a better life. Shakti had suffered from chronic kidney disease from childhood. In late 2017, at the age of 24, her condition dramatically deteriorated, and she was in need of a transplant. Although Prafula was not a direct match for Shakti, they joined the National Living Donor Kidney Sharing...